Both of my children have beta thalassemia, and in China, this is a very difficult condition to properly treat and for an orphan it is even harder to get appropriate care. My kids came home very small, very delayed, and very in need of medical care in addition to their need for a family. Watching them heal and grow and blossom has been a constant source of joy for us. In China my babies had a death sentence due to their thalassemia, but not here! In China they either did not receive transfusions at all or they received them over a two week hospitalization period where they were sick and alone receiving treatment.
So when I heard we were going to get to meet this cutie on our trip I was excited!!
Unfortunately, Hayden was receiving a transfusion the day I met all the other kids, so I didn't get to meet him even though he needs a family so badly. When the team saw him the next day after his transfusion he did not feel good. The Superkids team actually felt bad that they'd even brought him into the evaluation room rather than letting him rest! While the orphanage is trying to provide the care he needs, the treatment is just so different for him here in the states.
Here my kids play and watch movies and race their IV pumps down the hall while they wait for it to be done.
We are in at 8am to start blood work and see their doctors, by noon blood is started, and by 4pm we are headed out of the clinic all tanked up for another 3 weeks. They leave feeling so good that people who know them comment over the next few days about how much energy they have after getting their new blood! :)
This is not Hayden's reality right now but I know that it can be! It only takes one family saying 'yes' to change everything for him!!
Please share this and help Hayden find his family!
Another article about him can be found here:
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